Saturday, November 21, 2015

Finally back to normal

Micah had his metabolic appointment this past week. He has been going every 3 months. This was his one year anniversary of his diagnosis appointment. So he had an abdominal ultrasound along with his usual blood work. His doctors think he is looking great! His belly/liver is getting smaller. His blood work keeps looking a little bit better every time. He is finally just at the top of the normal range for his triglycerides! Praise God. The 'top of the normal range' means 100. Last year he was almost 800. His liver function levels are still slightly high but they are fine, I guess. He did have one test that was super high but the doctor didn't say anything about it and I guess isn't concerned. We are checking his ketones over night again to see if his corn starch dose needs to be adjusted or not, since he is growing! He is almost back to his normal growth curve. I think he is still a little shorter but the doctors said that he is back on track and normal. Since everything is looking so good, he does not need to go back for 6 months! Maelyn also does not need to go back for 6 months either, so assuming we have no emergencies or things come up, we will not be back to the hospital again until spring! Hallelujah! I love the hospital here, because they are so good, but I hate going so much. We were there just about every week for about 10 months. And now we get 6 months off! Ben was disappointed when I told him. He likes going (because the appointments are never for him), so he started to fake cough and tell me that he needs to go to the hospital. I said no way! All my babies are healthy and we are keeping it that way!

So, we are officially 'back to normal'. (With the exception of 2 am corn starch for Micah.) All three kids are healthy and appointment free, we are in a house that we are not leaving, I have a car that should not break down, and Tim's job is going well! I'm looking forward to normal stuff and trying to get back to a boring and uneventful life! For instance, we are starting solid foods with Maelyn so I've been working on making and freezing lots of baby food for her. We are also trying to get her rolling and sitting up since she will be 6 months old soon! Micah's starting to talk about using the potty and learning how to dress himself. We are talking about part time preschool for Ben. He is learning to write and spell already by himself! And I am psyched for the holidays. We are actually going to have Thanksgiving with friends. I'm planning for what to cook/bake for that (simple joys). The boys and I have already decorated the whole house for Christmas. We are planning on going to get a real Christmas tree this week. I've already overly Christmas shopped, and am excitedly planning for having family come to our home for Christmas! I'm just happy to have normal back, to feel secure in our lives, but I still hug my babies extra close everyday, and praise God for giving us this.



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